The moment of peace that descended on us when we were told we were only faced with potential Down Syndrome, not something else more devastating or fatal, is like nothing we can describe. But after all that fear and worry and stress, we were left with the peace that can only come with great surrender.
In those last few weeks, we studied Down Syndrome and we spoke to parents and families who had been affected by it. We tried to stick one foot in that door, just in case, and in the privacy of our home we tossed around our thoughts and feelings and retained our hope as we prayed our silent prayers: prayers of acceptance, of faith, and of surrender.
When she entered this world, we saw a squishy, healthy baby that had come quickly and efficiently to us. It was late at night and the nurses showered her with praise as they prepared us for her first night in this world. Yet one questioned remained: Did she have that extra chromosome?
You'd think we would have known instantly. We had done this before, certainly our parental instincts would kick in and overwhelm us one way or another. But truth be told, she was like most newborns, slanted eyes, a squashed face, a little swollen, beautiful and perfect. We had given her her name and she was ours.
But the first thing everyone wanted to know when we called with our joyous news was: Is she ok?
And we told them, yes, she is okay, one way or another. And the nurses reassured us that she was healthy but that they couldn't tell us anything more than that. They couldn't determine whether she had that extra something or not. We'd have to wait until morning.
Seven years ago today, morning came and it didn't matter really what the doctor had to say because the thing is, when you have a baby, your heart grows a little larger and beats a little stronger and the only thing that matters is that all encompassing love that is big enough to sustain life, whatever it may offer. And babies, well, they are gifts and like any heavenly gift, we don't get to pick out the details. And like most gifts, babies do nothing to deserve our love, they simply exist and we simply swell in their existence.
It's one of the few glimpses we get into the heart of God.
The doctor came in early and I could almost sense the stifling of a great chuckle when we asked him about her chromosomes. She had the typical amount he assured us. Yet what we felt was not some collective sigh of relief but the simple acknowledgement of grace: a grace that had allowed us to find peace in the midst of the unknown and assurance in our total surrender. And in that moment, we inhaled what was and exhaled what could have been knowing that either way, we had been given an incredible gift of love.